ICHOM Releases Patient-Centered Outcomes Measure Set for Major Injuries

ICHOM Releases Patient-Centered Outcomes Measure Set for Major Injuries

By: Alexandra de Leon Date: April 28th, 2025

The International Consortium for Health Outcomes Measurement (ICHOM) is excited to announce the release of its Patient-Centered Outcome Measures for Major Injuries. This innovative resource, developed through a global collaboration of individuals with lived experience, clinicians, and researchers, defines the outcomes that matter most to those with experience of major injuries. It emphasizes physical, social, and emotional wellbeing to support improved care delivery, resource allocation, and long-term improvement in patient outcomes.

Major injuries are a substantial cause of disability worldwide, contributing significantly to the global disease burden and representing a considerable public health challenge. According to the World Health Organization, tens of millions of people each year sustain non-fatal injuries worldwide, often resulting in lasting health consequences. This year-long project brings together an international, multidisciplinary Working Group to establish a scientifically validated resource that addresses these challenges in acute and longer-term care. The Set development was led by Working Group Chair, Prof. Belinda Gabbe (Monash University) and Research Fellows, Henk van der Wal (Erasmus MC, Dutch Ministry of Defense) and Winny Collot d’Escury (Leiden University). The Harborview Injury Prevention & Research Center’s Core Faculty, Hilaire Thompson, PhD, RN, ARNP, FAAN, was a part of this global working group.

The impact of ICHOM Sets is far-reaching. With the addition of the Major Injury Set, ICHOM sets currently map health conditions and lifespan health in 47 disease areas, addressing nearly 60% of global disease burden. With over 500 implementation settings in more than 42 countries, ICHOM is a community of practice focused on implementation and demonstrating impact for population health and individual improved decision-making. Jennifer Bright, ICHOM President, highlights the importance of this initiative: “The co-creation of ICHOM Sets with patients is critical to the relevance of these resources to real-world impact. Now, ICHOM and its collaborators turn our attention to the application of this resource in critical areas where clarity and science need to guide the dialogue, including:

  • Improving clinical pathways,
  • Providing a patient-centered data backbone for health technology assessment and
  • payment reform, and enhancing patient-centered dialogue to ensure access to treatments aligned with patient goals and quality of life.”

This project was made possible with generous support from the Transport Accident Commission Victoria, Stichting Ziektekostenverzekering Krijgsmacht, and the AO Foundation. We extend our heartfelt gratitude for their invaluable contributions. 

For more information and to download the Major Injury Set, please visit the ICHOM Website.

About ICHOM

The International Consortium for Health Outcomes Measurement (ICHOM) is dedicated to transforming healthcare systems worldwide by standardizing the measurement of health outcomes that matter most to patients. Through our comprehensive Sets and collaborative projects, we aim to drive improvements in healthcare quality and patient well-being.